Charlie Gard parents announce death of ‘beautiful boy’ – BBC News

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Media caption Eleven-month-old Charlie Gard was at the center of a legal battle over their treatment

Charlie Gard, the child at the centre of a legal line over his treatment, has passed away, a family spokesman has confirmed.

The 11-month-old was relocated to a hospice following a High Courtroom ruling.

He experienced an extremely rare genetic condition leading to progressive brain damage and muscle tissue weakness.

His mom and dad, Connie Yates and Chris Gard, fought a lengthy legal battle with Excellent Ormond Street Hospital (GOSH) to permit him to be taken to the US to get treatment.

Yet on Monday they dropped their particular legal battle after Prof Michio Hirano, the American neurologist who have had offered to treat him, stated it was too late for it to work.

In a statement released on Friday evening, Ms Yates said: “Our beautiful little child has gone, we are so proud of a person Charlie. ”

Perfect Minister Theresa May said: “I am deeply saddened by the passing away of Charlie Gard. My ideas and prayers are with Charlie’s parents Chris and Connie with this difficult time. ”

Pope Francis tweeted: “I entrust small Charlie to the Father and hope for his parents and all people who loved him. ”

GOSH said it sent the “heartfelt condolences” to Charlie’s mothers and fathers and loved ones.

ALL OF US Vice-President Mike Pence tweeted: “Saddened to hear of the passing of Steve Gard. Karen & I provide our prayers & condolences in order to his loving parents during this hard time. ”

Image copyright laws EPA
Image caption Chris Gard and Connie Yates fought a five-month lawful battle on behalf of their son

On Thurs, Ms Yates said the few had been denied their “final wish” to have more time with him following a High Court judge ruled which he would be moved to a hospice and also have his life support withdrawn immediately after.

The couple got wanted to take their son towards the US for nucleoside bypass treatment, but specialists at GOSH stated the treatment was experimental and that Steve had irreversible brain damage.

Hundreds of individuals – called Charlie’s Army : lent their support to their parents, who raised 1 . 35m to take him to the US regarding treatment.

The few fought a legal battle for 5 months, in which judges from the Higher Court, Supreme Court and the Western european Court all agreed with physicians that the treatment would not benefit Steve.

Charlie’s predicament attracted the attention of Pope Francis and US president Donald Trump.

Image copyright Featureworld
Image caption Charlie has been in intensive care given that October

Following the European Court ruling, the particular Pope said he was following the situation “with affection plus sadness”.

In a declaration released earlier this month, the particular Vatican said: “For them he or she prays, hoping that their wish to accompany and care for their own kid to the end is not ignored. inch

The US president after that offered his support, tweeting: “If we can help little #CharlieGard, according to our friends in the U. E. and the Pope, we would be thrilled to do so. ”

Right after his tweet, Prof Hirano co-signed a letter with other medical experts which usually suggested unpublished data showed treatment could improve Charlie’s brain problem.

They stated that “ideally” the treatment would 1st be tested on mice yet said that, in Charlie’s case, there was clearly no time for such a trial.

After examining Steve a couple of weeks ago, Prof Hirano stated it was too late for the treatment to operate. An MRI scan had proven there was no muscle at all within parts of his body.

Image copyright Featureworld
Image caption Their parents have described him being an “absolute warrior”

Paying tribute to their kid following the end of their legal problem the couple, both in their 30s and of Bedfont, west London, acquired described him as an “absolute warrior”.

On Monday Mister Gard said: “Mummy and Dad love you so much Charlie, we all always have and we always will and are so sorry that we couldn’t help you save.

“We had the opportunity but we weren’t allowed to provide you with that chance. Sweet dreams child. Sleep tight our beautiful small boy. ”

Picture copyright Featureworld

Schedule of Charlie’s case

  • 3 March 2017: Mr Proper rights Francis starts to analyse the case in a hearing in the family division from the High Court in London
  • 11 04: He says doctors can stop providing life-support treatment
  • 3 May: Charlie’s mom and dad ask Court of Appeal idol judges to consider the case
  • 23 May: 3 Court of Appeal judges review the case
  • 25 May: The Courtroom of Appeal judges dismiss the particular couple’s appeal
  • 8 June: Charlie’s parents lose their fight within the Supreme Court
  • 20 June: Idol judges in the European Court of Individual Rights start to analyse the case, right after lawyers representing Charlie’s parents create written submissions
  • 27 June: Idol judges in the European Court of Individual Rights refuse to intervene
  • 3 Come july 1st: The Pope and US Chief executive Donald Trump offer to get involved
  • 4 July: The Vatican’s kid’s hospital in Rome offers to take Charlie
  • 7 July: Great Ormond Street Hospital applies for a clean hearing at the High Court
  • ten July: Charlie’s parents return to benefit Court and ask Mr Justice Francis to carry out a fresh analysis of the situation. Mr Justice Francis says he can consider any new evidence.
  • seventeen July: Dr Michio Hirano, the united states neurologist, travels to London to look at Charlie
  • 21 July: Lawyer symbolizing Great Ormond Street says Charlie’s new scan makes for “sad reading”
  • 22 July: Great Ormond Road says doctors and nurses are subjected to abuse and received intimidating messages
  • 24 July: Charlie’s mothers and fathers say they will end their lawful fight for his treatment and allow him to die
  • 26 July: Deadline arranged for Charlie’s parents and Excellent Ormond Street Hospital to concur how and when he will die
  • twenty-seven July: Mr Justice Francis guidelines Charlie will be moved to a hospice and have his life support taken “soon after” after an agreement to determine his end-of-life care was not achieved