Demands for a medical cannabis licence to assist a boy whose rare kind of epilepsy improved after taking the medication have been denied by the Home Office.
Six-year-old Alfie Dingley, through Kenilworth in Warwickshire, suffers as much as 30 violent seizures a day.
His parents want to deal with him with medical cannabis essential oil, which is illegal in the UK.
The Home Office said the particular drug “cannot be practically recommended, administered or supplied to the public”.
A spokesperson additional that it can only be used for analysis.
Alfie’s mother, Hannah Deacon, said “you’ve got to guard your kids, I want to know that I’ve completed everything I can”.
Members of the all-party parliamentary team (APPG) on drug policy change is calling on the government to assist along with Alfie’s plight.
Ms Deacon mentioned Alfie went to the Netherlands to take the cannabis-based medication in September.
She said that whilst there, the medication, prescribed with a paediatric neurologist, saw his seizures reduce in number, duration plus severity.
At 1 point while in the UK, Alfie got 3, 000 seizures and forty eight hospital visits in a year, but whilst abroad he went 24 times without a single attack.
“It’s very rare and very aggressive, there may be only nine boys in the world along with Alfie’s condition, ” Ms Deacon said.
“We never ever imagined how well it would function. He’s just a six-year-old boy, this individual deserves a happy life. We have found something that makes him joyful and now we’ve got to take that aside. ”
Ms Deacon said his cannabis dose has been “very small” and he was using three drops of the oil, that is made using whole plant marijuana.
Alfie’s mother said the steroid drugs he currently takes in hospital can eventually cause his organs in order to fail if he keeps having them at the rate he is.
“He doesn’t understand any different, he’s had a extremely traumatic life. He’s held straight down and injected, ” she stated.
With the Dutch marijuana medication, it is estimated Alfie could have about 20 seizures a year.
He stayed with his mother and father in a holiday camp in the Holland to receive the treatment, but without health care insurance in the country they had to return home within January.
The APPG wants Home Secretary Amber Rudd to issue a licence regarding him to continue taking the medication.
Group co-chair, Conservative MEGAPIXEL Crispin Blunt said: “It will be heartless and cruel not to enable Alfie to access the medication.
“Parliament really must take a look at reforming our laws to allow entry to cannabis for medical purposes, that has huge public support. ”
The Home Office said this recognised that people with chronic discomfort and debilitating illnesses are “looking to alleviate their symptoms”.
A spokesperson added: “However, it is necessary that medicines are thoroughly tested to make sure they meet rigorous standards prior to being placed on the market, so that physicians and patients are assured of the efficacy, quality and safety.
“Cannabis is listed like a Schedule 1 drug, as in the raw form it is not recognised in the united kingdom as having any medicinal advantage and is therefore subject to strict manage restrictions.
“This indicates it cannot be practically prescribed, given, or supplied to the public in the united kingdom, and can only be used for analysis under a Home Office licence.
“The Home Office would not issue the licence to enable the personal consumption of the Schedule 1 drug. ”